Showing posts with label Breast cancer. Show all posts
Showing posts with label Breast cancer. Show all posts

Thursday, August 6, 2020

School is Coming

It's looming.

Whether we all want to deal with it or not.

School is coming.

No matter the choice we make with and/or for our children and family members, it's the right one. There is no right or wrong.

There's no judgment here. You do you. I'm doing me. And good luck and good health to both of us.

We've made our decision, as a family, based upon our family's health history and dynamic, as well as both parents professions. My family will be doing online learning. Yes, because both parents are online educators. But also because the start of the school year always brings home the myriad illnesses, and what could be a sniffle in my 11-yr-old could be a life-altering, or perhaps -ending, disease in my almost 14-year-old, me, or my husband. #AndAlso bc that's what we as a family collectively decided. Oh, and #Science and #Data also play a big part in our decision making, too.

So, the institution for which my husband and I are employed decided during the spring quarter that we would be online for fall. Except for specific programs and labs, for which there will be social/physical distancing requirements, including masks covering the nose and mouth. Please contact your advisor for further information. Also, we are, as an institution, still open and operating during the summer, and many of us are even prepping for the fall quarter...

...and here y'all thought we did nothing but sit around gettin some type of cancer or a broken arm every summer! Nope, we're working! #TeamAnderson

But, anyway. Distance learning...my husband and I chose to have a discussion with our sons about what our employer had planned...and what we anticipated public school to look like for them upon their return in the fall. We talked about masks covering their nose and mouth, the physical distancing, we didn't know what PE or recess or assemblies would look like...but to not even worry about those pieces yet. This was one of many conversations with my children throughout the spring...and ultimately, my community was waiting for our local school district to make decisions about how to best offer learning opportunities for the community given the pandemic...and we weren't gonna know anything until at least the end of June or early July.

When the opportunities were presented, we provided the information to our children.

We talked about the ABAB face-to-face model as a learning opportunity, where they'd go to school on a staggered style: Monday and Thursday or Tuesday and Friday, with Wednesday being an online learning day...or maybe a massive cleaning day. Both? And my kids were a firm no on that. Because, as my 11-year-old son pointed out, why bother going for two days and risk getting anything, let alone COVID? #HesASmartCookie

While my husband and I made the decision back in the spring regarding what to do with our children's education in the fall, we wanted to give our kids the information and give them the opportunity to think about the options, and come to conclusions on their own. #Democracy

Yet, we also wanted to gently guide them and encourage them to not go to school because #Parenting
 
We kept close eyes on what universities and colleges across America decided regarding the fall term. When the entire University of California System said no face-to-face learning for the fall...as educators, we knew those universities made the right decisions for their communities.

We also looked at the data trends within Clallam County. On the one hand, it's kinda cool that we can start to see trends in the data and now have enough cases that we can get a break-down by age and regional distribution of COVID-19. On the other hand, this means we're seeing an increase in cases in our county, and we all need to recognize that we are all living here together and to please do our best to follow the rules and wear masks. Please. And thank you.

The local county health department data show, at the time of this writing, that the highest numbers of cases were in the following age ranges: 20 cases of 10-19 year olds; and approximately 17 cases in the 50 year olds. And that's my family of fellas. Except me: I'm in my late 40's and there's only like six cases...so my age group is low because we're all dealing with oppressive midlife crises and are masking up. Oh, and of course the kids in their 20's also have about 18 cases, according to local data...but everyone knows you're invincible in your 20's...right? #sarcasm 
 
But, the point is, you don't want to be on the bar graph. You with me? For real.

So, am I sending my children into the Petri dish that is school? #FuckNo

You are? Fantastic. Good for you. Totally support you. Totally. Because I have absolutely no idea what your life is like, and I'm absolutely not judging you. I have confidence that you had numerous discussions with your children and family members and that you making the best decision with and for your children and family.

Because we can't NOT talk about COVID. It has consumed our culture. My kids incorporate it into their play. I tell my nearly 14-year-old son, the one who is developmentally delayed...yeah, I say, "Wash your hands and make big bubbles. You need to get rid of all the COVID." For real. I wish I didn't have to say things like that to my son; but I get to. #ISurvivedBreastCancerForThis

I also wish our country, our economy, and our culture did not make it so parents are actively having to choose between being employed and caring for children. I hope someday that people are not forced to choose between caregiving and employment.

I recognize that my level of education, the color of my skin, my gender and my chosen profession award me certain benefits and that I am very fortunate to be employed and that my family has health insurance. Because my family is expensive.

Why? My family has been hit by lightning too many times. I've bloodied my knuckles climbing out of pediatric neurological disorders, as well as mine and my husbands cancers, and the unimaginably seriously fucking oppressive stress that naturally accompanies those life-threatening health issues.

So, sending my kids to the school during a pandemic? Even though the numbers in my county are still, kinda...currently...low? No. I'm just not into borrowing trouble.

My older son, needs 1:1 support throughout much of his day...and so how's that gonna work with physical distancing? Not to mention the stress of having to keep a mask on all day. And see classmates and teachers in masks? Ummm...#Anxiety much? He's got a formal diagnosis of anxiety, so how in the fuck do you work all of that mask-wearing, hand-washing, physical distancing in to an Individualized Education Plan?

I have zero desire to deal with that. And, thankfully, neither does my kiddo with special health needs. #HesASmartCookie

Oh, and have I mentioned he's o
all the meds
All the pharms
(top, AM doses; bottom PM doses)
n a shit ton of medication to help control his seizures? The upside of him being home since mid-March is he's now having fewer seizures because he's not plugged into a computer all fuckin day like he was at school, thank you very much. I mean, if he's gonna be plugged in all day, he can do that shit at home, bitch. #ForReal #YouGuys

 And this kid always, always, gets hit the hardest and the longest during cold and flu season...his body works really really hard to process all the hundreds of milligrams of anti-seizure meds.

#AndAlso the price of said anti-seizure meds: $850 a month.
 
#ThankYouUniverseForHealthInsurance

Honestly, the kid's as happy as a clam sitting in his room making playlists on his Alexa Dot, playing with his Rubik's cube. Hanging with Mochi.
Mochi's favorite mask. For real. He's a fan.
He's having an ok summer. He is glad to get out of the house and go to Hapkido twice a week. He and I are training partners, and we're having a lot of fun throwing each other around and learning how to correctly break each other in half! 

But 11...he's a little more tricky...like many of the neurotypcial younger siblings that I know, my second son is much more social than my first. He misses his best friend, as well as his Hapkido training partner, both of which are wonderful and amazing young ladies. It's his fabulous man hair. He gets that from me, you guys. Because he certainly doesn't get it from his father. #Bald
 


And it's not that my kids don't want to go to school. They do. They miss their friends and the trusted adults they work with. My kids miss sports. My kids miss life as they knew it and absolutely long for a sense of normalcy in all of this craziness.

While I understand that there's a longing in people to "get back to normal"...in my mind, there is no "going back".... Really, we can only keep moving forward.

When I had my first needle biopsy done on my breast, before we knew I had cancer, I remember that the female tech that was assisting the physician told me that the first needle biopsy was always the scariest because it's a brand new invasive test. And then she said that she was a stage 4 breast cancer survivor, she had a double mastectomy and reconstruction (didn't plastics do a fine job? she was quite pleased) and that her cancer experience caused her to learn to live differently for a while...and she learned to live in a new normal.
My 11 yr old and his new Star Wars mask
My 11 yr old and his new Star Wars mask

That woman and her words have stayed with me for five years. And I think that's what we all need to do is learn to live differently for a while.

But to define "a while"...I have to look to the last pandemic which was the 1918 Spanish Flu. And that motherfucker raged our planet for two full years. And ya know how they got rid of it? Masks! For real! And, by the way, masks were political 102 years ago. There was even an Anti-Mask League based in San Francisco.

 
During the Spanish Flu pandemic, schools in major cities remained open, at risk to students and teachers. And, of course, the families supporting the kids and the adults. But back then, "Some cities, such as Boston and New York City, established school corps, comprised of medical inspectors who made daily rounds through the public schools to determine the health status of individual children and entire classrooms."
 
Wait! What? They had physicians in public schools who had eyes on kids every day. Can you imagine if we had that now? Even before COVID? 
 
But, back in 1918, many American families didn't have flushing toilets and hot running water from a tap in their homes. And bathrooms in NYC? #forgitaboudit Bathrooms were communal. You, me, my family, you family, and probably all the families on the entire floor of our highrise apt are sharing that limited space. #germs Oh, and someone would have to be responsible for running the chamber pot downstaris to the Night Soil Removers. #forreal

Or, you could just take a dump in the outhouse on the corner. Your choice. 

Thankfully, many people in Western cultures now get to poop in a toilet in their own bathroom and wash their hands with hot water from the tap. But, not everyone in the world is as lucky as us. And if you wanna learn more, please feel free to check out this TED Talk called Let's Talk Crap. Seriously. It's brilliant. 

But, let's get back to school. Because school is coming.
 
And so, if it means you're choosing to not send your kids to school, and do whatever type of learning works best for you and your family...? That is fantastic. 

And if you are sending your kids to school...? That is equally fantastic.
 
But, I have the some questions. And, no, I'm not starting a fight. These are legit questions I have, and I'm curious to know if other people are thinking about this, too...?

What about immunocompromised elders? And I'm not talking grandparents. Parents are elders too. What about parents?

What about immunocomopromised children who are at school? How will those kiddos stay safe? 

Why did the GOP cancel their national convention in Florida? Why did the individual currently occupying the Oval Office say "I looked at my team and I said the timing for this event is not right. It's just not right with what's been happening." Translation: my handlers said I can't have a pep rally for me bc COVID. #Hypocrisy

But the GOP wants to send your kids & teachers to school? So, in my mind, they are saying "we're more important than you, so we're canceling our biggest in-person event of the entire year, but you peasants can just go to school." Why are people accepting this bullshit? Because that's exactly what the fuck it is: BULLSHIT.


What about the pictures of reopened schools that are making their way across the internet? You know the ones...where kids are seen crowded together in hallways and classrooms and maskless? And what about that little second grader down in Georgia who tested positive for COVID on the first day of school? FIRST DAY! Sweet Baby Jesus! How many people did that little dude expose? 

 

Or what about an entire fourth grade class in North Carolina, who are now quarantining? Worth noting: the individual currently occupying Number One Observatory Circle, who is commonly known as Pence...as well as Secretary of Education DoucheVos personally visited this chain of private schools and chose to not wear masks. So, lemme get this straight: they visited a private school, told the folks at the school how important it is that they are opening, but refused to wear masks so they didn't protect anyone? Um...way to model that example there, federal administrators.


How do you feel about the fact that some teachers are preparing wills as they get ready to go back to school? I mean, it's absoultely a great idea that if we are adults that we have a will in place. Especially if we have children. Because, if something unexpected and potentially catastrophic were to happen to you and or your children's other parent...speaking from experience...it's a damn good idea to have one. But as part of prep for the school year...?


If you send your child to school, who is responsible for providing the mask your child is going to wear?


And, did you know that the recommendation from Johns Hopkins Medicine is to wear the mask once? ONE TIME! And then you gotta wash it! So, basically, you gotta treat your mask like it's shitty underwear. Parents, are you hearing me? And, no, you don't get to turn your mask inside out and wear it a second time. Masks are a one shot deal, if you will. #shotmywad So, do you have enough masks, and enough laundry detergent, to keep up? And do you have the time and energy to wash your children's masks each day? #BossLevelBitchChores

 

Finally, how in the goddamn are teachers supposed to keep kids physically distant during an active shooter drill? Or an actual active shooter? I know. They'll all hide like they're supposed to. But, still. This is a real-life situation that students, teachers, and administrators are gonna need to deal with.

 

I get it. This is a really big fuckin deal. Nobody likes change. 

 

I get that schools are responsible for so much more than "just" educating our kids. Health care, nutrition, child care, making sure they are safe and loved while they are at school which is basically mental health care. So, if schools are that important, why is the fed cutting funds and cutting funds and cutting funds and expecting teachers to do more and more and more with less and less and less? And, by the way, the individual currently occupying the Oval Office can't just cut funding to schools. Motherfucker's mouth runs faster than his atrophying brain.

 

But every time Governor Inslee makes an announcement people "can't even with him" and they "need to take a social media break." I get that people don't like the fact that the man is the bearer of news they don't want to hear. But really, if you don't like the fact that Governor Inslee is relying on scientific data to make decisions about your health, there are several states that don't rely on data and I'm sure they'd be happy to receive you. Please feel free to look into Arizona, Texas, and/or Florida, where the governors of those states are totally fuckin Mochi about the health of their constituents.

 

Is Inslee doing the right thing by saying that schools can reopen based upon the county's caseload. Today, that's the right decision.

 

Do I anticipate that it will change? Absolutely. 

 

I think it's a good idea to cancel sports? As much as it sucks, yes. Please note, both of my children are athletes. 13 is a gold medalist in Special Olympics Basketball. And he has kicked some major ass in SO Bowling. And 11 is Messi (aren't they all?). And yes, they absolutely miss their sports. And yes, my husband and I absolutely miss watching them play.


And, as much as Inslee is the one saying what he is, he's getting recommendations from the Washington State Deparement of Health as well as the Washington Office of Public Instruction. 

 

I don't think he wants to be the bearer of this news. But it's his job. And I anticipate his job is gonna get a little tougher as we get closer to the school year starting in September. And then into the fall and even into the winter. Becasue, no matter how badly we want it to go away, COVID is gonna be here. 

 

And I think we all need to be prepared that even if everyone does go back to school, there's a good chance we'll have a second wave...pay attention the history of diseases. The Spanish Flu of 1918...? Three waves and 50 million deaths worldwide. So look alive, please! #payattention

 

Vaccine? Too soon. The quickest turn around for any vaccination to be successfully created and properly tested was four years, and it was for the mumps. In 1963, a child named Jeryl Lynn was sick with the mumps. Fortunately for her, her dad was a microbiologist named Maurice Hilleman...and as luck would have it, he specialized in vaccinology (no really, it's a thing). So, basically, he used his daughter's mumps and created the vaccine, and then it was tested in rats and then in people and then in 1967, the vaccine was licensed and mass produced and that's why mumps is no longer a childhood illness. You're welcome. And, worth noting, Hilleman is responsible for creating a whole bunch of vaccines and keeping us healthy. Check out the link I provided on his name. And thank you, Dr Hilleman. I sincerely wish you were with us today to help with the current pandemic.

 

So, anyway, my point, wrapping all of this up because it's #bongthirty or #wineoclock somewhere, is that we all get to learn to live differently for a while. 
 
And if that means you are choosing to send your kids to school because of your reasons, that is totally fantastic. Good luck.
 
And, if you're choosing to do homeschool, or virtual school, or even take a year off of providing a "formal" education for your kids, that is equally fantastic. Unschooling is cool.


The bottom line is we're all making what we feel are the best decisions for our family. And we need to support one another in those decisions.

 
You do you. I'm doing me. And good luck and good health to both of us.

And thanks for reading. x



Monday, April 6, 2020

Heading Out

I'll be heading out soon.

To the grocery store. Which also happens to be our pharmacy. My kid has epilepsy and is on a lot of pharmaceutical medications to control his seizures. But he still seizes.

So I'll be heading out soon.

Normally this isn't a big deal in my world. I mean, it's just going to the grocery store, walking up and down each aisle and meal planning as I go. Getting food for several days. Chatting with my favorite employees in different departments. Catching up with my favorite cashiers about life. Friendly faces. Paying. Loading up. Going home. No big deal.

There have, of course, been times in my life where going to the grocery store was a huge undertaking and horribly scary. Like the first time I headed out to the grocery store by myself with a brand new baby. WTF? #Terrifying But I eventually mastered that nonsense.

And then I was crazy enough to take both a toddler and an infant? #WhoDoesThat Did I really do that? How do women with more than two kids do this? You ladies are fuckin amazing batshit crazy brave wow good for you! #ItsNotACompetition

I know I had one of those fancy cart cover seats that I made out of fleece and denim so that I put a physical barrier in between my toddler and the germ-infested cart. Jesus, child! Don't gnaw on the cart handle! Who does that?

When I was going through my Breast Cancer Adventure in 2015, going to the grocery store was scary. Why? Because receiving chemotherapies caused my immune system to be weaker. So, I started wiping off the grocery cart handles. And people would give me these looks like I was freak. But then they would see that I was a bald lady and then they'd quickly avert their eyes. As if making eye contact with a bald woman was going to actually give them cancer. My mental health therapist at the time encouraged me to ask for help from the clerks..."Let the courtesy clerks load your groceries in your car, Rachel! You're being treated for cancer, for goodness sake! It's ok to ask for help." I gave myself permission to accept the help from the clerks. And all three boys unloaded all of the groceries when I got home. The kids were in first and third grade; they were much more eager to help back then.

When my husband was going through is Tonsil Cancer Adventure in 2016, I kept wiping cart handles because Sweet Mother of Christ what if I got some germs on my hands and brought those germs home and he contracted whatever illness was carried on those germs and I killed my husband? Seriously. Having cancer in the house one time caused us to re-frame our thinking for everyfuckinthing. Having cancer in the house a second time two years in a row caused us to up our game even more. When your husband is being kept alive by two catheters...one going to his stomach and the other going to his heart...there is absolutely no fucking around with the tightness of the ship you run.

Now that my kids are older, going to the grocery store become a sort of meditation for me. I really do walk up and down each aisle. I really do know that my friend #MaAm totally makes fun of me for doing so bc she's an in-and-out type of gal. I really do meal plan as I go. And sometimes I end up getting things that aren't on the list...because I remember that I need it when I see it. Like dishwasher detergent. Or parchment paper (thanks JT for that brilliant suggestion!).

But now, because of Coronavirus, going to the grocery store has become a big anxiety-causing deal. On the upside, I don't have to go often. #AndAlso I can feed two birds with one hand since our pharmacy is inside our grocery store. #SafewayForTheWin (Also, see what I did there? Feed two birds with one hand instead of killing them? #ImSoClever #Rhetoric #MmmHmm)

We placed an order for delivery from Costco.com, and everything went really smoothly. I mean, I actually spent less than I normally do. Annnnd I got paper towels and toilet paper...?! Anytime you can get out of Costco, especially without going into Costco, for less than $200...? Win!

When I called the grocery store's pharmacy, I spoke with My Favorite Pharmacist, who, small town, his son used to work for my husband in the Math Lab. Because of the fact that my son takes so many meds, I'm a frequent flyer at the pharmacy, and it's seriously like Cheers when I step up to the counter: everybody knows my name. Also, I'm very thankful for stellar health insurance...but that's a blog post for another time.

According to the American Cancer Society, "Most people who were treated for cancer in the past (especially if it was years ago) are likely to have normal immune function, but each person is different. It's important that all cancer patients and survivors, whether currently in treatment or not, talk with a doctor who understands their situation and medical history." (para.2)  On the one hand, I just celebrated the fifth anniversary of my lumpectomy, and five years is a huge milestone for cancer survivors, so I'm very thankful to be here. On the other hand, my anxiety is sky high because that's just how it is. Also, the last time I was out in the community was on Saturday March 21st...two and a half weeks...it's been a while.

When I spoke with My Favorite Pharmacist, I reminded him about My Cancer Adventure, and he said that there are special times the store has set aside for folks who may have a compromised immune system: seniors, pregnant women, and others with health issues. He encouraged me to go to the store during that time.

We talked about mailing my son's meds...but we have a PO Box, so that would mean going to the Post Office and risk exposing myself. Because I know that the more places I go, the more exposure to germs I have, the more likely I am to get sick. Or infect my husband, who also happens to have a bicuspid aortic valve and survived staph endocarditis prior to his Tonsil Cancer Adventure. Or I could infect my older son. What's the truth about rationing health care for people living with disabilities? Would the hospital where he was born treat him? How would they manage him? Could I be with him? Because there are stories surfacing that when a person is really sick with Covid-19, they aren't allowed to have visitors. How will that work with my son and his verbal delay and limited cognitive abilities? He's developmentally in the first grade. Would I ever see him again? Or I could infect my younger son, who probably knows more about epilepsy, autism, ADHD, breast cancer, tonsil cancer, and broken arms than most kids who are on the cusp of turning 11. And if I infect him, then he won't go on to earn #AllTheOscars. Or win the Nobel Prize for Whatever. He'll probably petition the Nobel Committee to include Mathematics. Did you know that there is no Nobel Prize for Mathematics? No shit. The Math Prof Rock Star said the legend is that a mathematician ran off with Dr Nobel's wife. But in reality, nobody knows why Nobel chose to not include mathematics. Maybe he just wasn't mathy...?

But he did dig on chemistry.

And that's important to me.

Because my kid needs his meds. To mostly control his seizures.

So I'll be heading out soon.

And, yes, #MaAm, I'll go up and down each aisle. Because who knows when the next time I'll be able to get out.

And we all know dishwasher detergent will be important to have during the next phase of the #Coronapocolypse.






Friday, March 20, 2020

Days Are Running Together

Wednesday morning all four of us left the safety of our home and went to the boys' schools. And, #SweetBabyJesus that was a knife to the heart.

We stopped at my younger son's elementary school first, and saw numerous caring adults who have been working with my family for years that provided an array of expressions, including disbelief, worry, and genuine sadness. I think this is typically called "deer in the headlights." But it's also known as "unexpected traumatic stress." This is exactly what we are all dealing with because of the sudden closures of schools across Washington State on Monday.

Schools across the nation are in the process of shutting down and not opening to the public. There's never been anything like this...oh...wait...except the 1918-1919 influenza pandemic. And, then there was the H1N1 flu. Since we're likely to be locked up, or locked down...? Huh. What's it called? Squat and stay? No. I think it's "Sheltering In Place". Yes! So since we'll be #ShelteringInPlace for an extended period, I encourage you to get your hands on a copy of The Great Influenza: The Story of the Deadliest Pandemic in History by John M. Barry. Yes, it's available on Kindle. You're welcome.

Anyway. In spite of My Three Fellas knowing I'm the social butterfly of the family, we all know that I know the layout of the school better than my husband, so we agreed that I'd accompany our younger son in to his school to retrieve his stuff. And, yes, I agreed to seriously limit my throwing of jazz hands and talking with people. And I'd sure as shit not get closer than six goddamn feet to people, even though we mostly know I'm a hugger (mostly).

The front door was held open for us by one of the male paras, I felt a need to bow as if I was walking into the dojang. We stopped and sanitized our hands as we walked in and were greeted by The Commander, who directed us to touch as few things as possible. We quickly and quietly headed down the hall towards the classrooms and touched absolutely nothing. I step where you step. I touch nothing.

My son and I went to his homeroom first, read the notes left by the Compassionate Boundary Setter on her white board, gathered his materials and belongings, left what was required on the desk, and swiftly left the room. We stopped by his locker and quickly put his things in his backpack, zipping it as we walked. Quiet. His long dark hair waving in the breeze he created as we walked, which was covered by his Dad's black Bugs Bunny baseball cap, which is more than twice his age.

Mochi gives zero shits that Sir Paul is home.
We headed down the hall towards the classroom belonging to She With the Largest Fifth Grade Library and were pleasantly surprised to see her behind the kidney table, with stacks of books, which she had somehow magically obtained books for the kids to read. #OfCourseSheDid We exchanged pleasantries, but in a hurried way...don't want to linger...two other fellas in the car. Do we take Paul? Yes, she said, all their art needs to go home. Thank you. Take care of yourself and your family. 

And then, my son looks towards the milk crate that holds the weekly Red Wednesday Folder, which the school uses to send materials and communication home. The Folder is to be emptied and signed by a child's parental unit, and returned to school the next day. Now, this is actually pretty hysterical because for years I've volunteered countless hours in my son's classrooms collating the Red Wednesday Folder. Like, it's even known as #RedFolderRecon and this is why Wednesday is my family's favorite day of the week: I get to volunteer. Standing around the table, one, or perhaps all three of us, said something about Wednesday Folders, laughed, and said our goodbye's, as we briskly walked back to his homeroom for the one item we left: my son's Red Wednesday Folder. #MyLifeIsAComicBook


Back down the hall, hurry, passed our favorite paras, can't breathe, wishing only the best for each other and all of us, pick up the pace, towards the front door and the door handle! #Cooties Ew, child! Dude! Arms in! Thank you for holding the door open, Mr. Ridge Para! Blue sky! Green trees! Breathe!

We were in and out in under three minutes, but it felt like three hours. Thanks to all of the folks at Roosevelt for being so on top of everything. You are all amazing and we already really miss you. Commander, I'm thankful you're at the helm. Be well. #OnceACougarAlwaysACougar

My family then drove across town to the middle school, where we discovered the parking lot was pretty empty. Our older son decided he wanted all four of us to go in, so we did. I'd received an email and a robocall from the school that I owed $1.65 for my son...so I dug the change out of my wallet in the car on our drive to the school. Because, in all of this shit that's going down, I will not be indebted to the school for any amount of money; there are bigger problems in the world.

When we walked into the entrance to the school, there was a hand sanitizing station, so we stopped and sanitized before entering. There were tables flanking the entrance, stacked with books for the kids to take. Twist our arms to take free books. I mean. Thanks!

The middle school was a completely different story in terms of access. Kids were not allowed in the classrooms, they could go to their lockers. But my son doesn't have a locker because he's a Special Education Kid, so that was off the table. As for going in to his classroom? The one where he spends 5 out of 6 periods, including his lunchtime? Yeah...that's a no go, too...but I've known that since school started in September, when I asked my son's Special Education Teacher how I can help her by volunteering my time...and she said she doesn't allow parent volunteers. #WishICouldMakeThisUp and it really does get better...or maybe worse, depending on your world view. #ButNowsNotTheTime

While my husband kept the boys busy in the entryway, I ran down to the cafeteria and paid the outstanding debt of $1.65. I ran back up to the front of the school #RunningIsBullshit and then we graciously and quickly said our goodbyes to the Vice Principal and the few staff members.

We came home and ate lunch. We spent a good part of the afternoon outside. Swinging is so therapeutic for them.

He's trained. 
Annnnyyywaaaayyyy.....

Remember that whole, "we need to reschedule your annual mammogram" thing from earlier in the week? Yeah. Well apparently, when you're a breast cancer survivor,  and your medical oncologist orders a mammogram, you get that shit done, regardless if there's a virus running around out there that is killing people. Am I still immunocompromised because of My Cancer Adventure? I could probably Google all that shit, but to be safe, I'll say, probably yes. #FirmAnswer

So I went today, to the hospital and as many times as I've walked in...to see my husband when he was near death when he had staph endocarditis...to deliver both my babies (they were born in the same room; water side)...the emergency room visits for broken arms and stitches in the chin (all my 10yo)...to my lumpectomy five years ago today...this was by far the most anxious I've been to walk in the front door of my community hospital. #StayTheFuckAwayFromMe #Bitches

There was a new to me security detail, who checked me in at the desk, because the lady working was on the phone...and I told him where I was going, he looked me up and gave me a 3x5 card size neon green sticker granting me access to the Imaging Department on 3/20/20 only.

I walked back to the office and checked in, and talked with the receptionist because it's a small town and I know a lot of people because I'm a social butterfly like that. But really it's because our kids go went to the same school.

I waited and waited and refused to sit because what if someone with Coronavirus but is not showing symptoms was just in the chair that I choose to sit in? What if I get the virus on my pants and then its in my car and then I sit on my bed without thinking and then I totally just wasted all of my time washing my quilt on my bed yesterday. I'll just stand. For forty minutes. Because someone was in surgery and they needed the mammographer lady...? And I don't fucking know can we just get this done? Today of all days? And with this mother of all viruses? I just wanna go home and swing.

The tech was lovely, and had stellar PPE (Personal Protection Equipment) including a FACE SHIELD! She was incredibly apologetic about being late...but she is taking extra precautions and wiping everything down with wipes. Including the hooks where I hung my hoodie. I asked. #OfCourseIDid

She sent my boob pics to the radiologist immediately and came back in. Everyone's anxiety is through the roof right now and they both completely understood my desire to know. And I'm clear. So much gratitude to have the scans read immediately.

I bounced outta there and headed to a few stores, because goddamnit the Governor could lock us down at any minute, just like California, New York. And now Illinois. But the Governor of Washington also has confidence in us as citizens, and that we'll stay home and that he won't have to officially lock us down.

Please, people, stay home with your family. The only way we can combat this disease is to stay home. And that means no play dates for kids. No swingers parties for adults. Do not leave your house. Stay. Home. Do not have people over to your house. They need to stay in their own home. Social Distancing is a legit way to combat this. And if we all step up now, in the springtime, and STAY HOME then perhaps we won't have to during the summer and perhaps we can return to the lake and the beach and the trails. But only if we all work together and STAY HOME!!!!

Am I looking forward to homeschooling my kids? Not especially. Am I expecting the OSPI and my local school district to step up and help parents? Absolutely. But they have to consider equity. All the kids need to be provided the same educational opportunities. Basically, my kids have access to computers and internet. But, if you have a kid who doesn't have secure housing, they sure the fuck don't have a computer and can't do their assignments. So that's not very equal, and that kid is gonna get left in the dust. So the State of Washington is trying to figure out how to help ALL THE KIDS. And I mean the highly capable kids, and the neurotypical kids, and the kids who have delays. The State has a HUGE systems change that they are being forced to look at because of the pandemic.

One of the things I've been trying to work through this week with The Fellas is that we all had the rug pulled out from under us...and we need to give grace, and allow time and patience to figure out new ways to live. We were all scrambling on Monday. But we made it a week! And the sun has been out, which I can attest that absolutely made this easier! Can you imagine if we were dealing with this on a grey week? #SweetBabyJesus

So, as a whole, if we've made it this far, while we don't have any way of knowing what's coming, we do have the opportunity to prevent as much sickness and misinformation as possible. You can find information at CDC, NIH, and WHO. 

Thanks for reading. Stay home. Wash your hands. Be well.

-Rachel

PS. And eat all the motherfuckin ice cream, because why the fuck not?! Thanks, Em! Your ass better be at HOME!!!! 
Don't worry, Meghan, I'm not calling you out.






Tuesday, March 17, 2020

Tuesday March 17, 2020

As is becoming the norm, things are moving fast, and projections are starting to become ominous. Like that school may be out for forever. 

And that the State of Washington won't give Clallam County any test kits until we have a positive test. What the actual fuck? Here. I don't know if these guys would know anything, or be able to do anything, but it may worth your time to email to our County Commissioners, as well as our the good men who represent the 24th Legislative District: Mike Chapman, Steve Tharinger, and Kevin Van De Wege. 

If you want to make change in your community, do it. Stand up. For all of us.

Oh, and ask them about passing a bill that make sure people can't get evicted for not paying rent, or foreclosed upon, since our entire society is shutting down. Thanks.

Annnnyyywaaaayyyy.....

Nathan's feeling ok; his left shoulder is sore and he's got a nasty bruise on his leg, and his head is ok. Thanks to everyone for reaching out. We sincerely appreciate the support.

Isaac and I got outside for quite some time today. He did some swinging, like he does. He catches some serious air.

I worked on spreading the mulch with a shovel and a rake. We talked about what happened yesterday, and how important it is to have extra awareness right now, and stay away from the hospital as much as we can. Don't be a dumbass and do stupid kid stuff, boy child. Youngling. #YChromosome

Speaking of which, a dear friend of mine had a mammogram this morning, and is fine. Her text about how it went prompted me to call the imaging center to confirm my own appointment for Thursday morning, and was told to be there at my scheduled time.

Um...social distancing? I'm literally breathing the same air as the woman who is touching my breast with her pink gloved hands, putting one breast at a time onto a plate and squishing them with another plate and taking a picture of all the gross mushy red stuff inside! Hello? That's about as intimate as you can get without exchanging bodily fluids...and I sometimes leak during a mammogram bc breast cancer duh! You'd think you'd at least walk out of there with a fuckin lollipop but no. Not even a goddamn Life Saver Mint individually wrapped in plastic. Fuckin bullshit. #NoReachAround

And, yes, I realize the irony of the placement of this image of my son. #Obvs

Annnnyyywaaaayyyy.....

So, then this afternoon, my phone rings and the boys feel it is their duty to let me know, because clearly someone from the outside is trying to get in...which is rare in my world. And it was the imaging center telling me that bc of social distancing, they need to reschedule my mammogram.

That's how fast things are moving. 9am today, "Come on in! You're the next contestent on the Boob Squish Machine!"

3pm: #OfCourse they have to cancel and #ThankJesus I don't have to make that decision.

Because on the one hand, I'm at 5 years. On March 9, 2015 I was told I had breast cancer. On March 20, 2015 I had a lime-sized tumor removed from my right breast. I'm lucky in a way, because even though my type of breast cancer was the most aggressive type a young woman could have, the longer I live, the less likely this specific type of breast cancer can come back. I had a triple negative tumor, meaning that it didn't have any hormone receptors and the chemo was going to suck big time, which it did.

Yet, on the other hand, as a survivor, I know I'm supposed to have an annual mammogram to make sure that I'm not growing any new tumors. My radiation oncologist shot the shit out of my right breast...she wanted to make sure that nothing would grow again, and I know it's likely to not. And, because of all the radiation, now I am able to shoot a green laser beam from my right breast. Because duh. It's pretty hot, you guys.

On the one hand, I have anxiety about developing some type of cancer in my left breast; on the other hand, I just had a very thorough breast exam from my primary provider.

And, in reality, I'm more concerned about people I know and love contracting Coronavirus from a spreader. Please watch this 50 second clip from Max Brooks, the son of Mel Brooks. And if you don't know who these men are, then go read "World War Z" and watch "Young Frankenstein"; you're welcome.







#AndAlso, historically it may have been somewhat socially acceptable to say "you're dead to me" if someone makes a cultural reference that you don't get, or a food you've not tasted...but, in this day and age, that's horribly rude and I'm declaring it no longer funny.

#DontBeASpreader

#ThanksForReading

Love and feathers,
#MaRa

Monday, March 16, 2020

Monday March 16, 2020

My husband and I made the decision last night, after the blog was posted and we officially unplugged for the day at 9:00 pm, to not send the boys to school on Monday.

And then the school district called at 9:26 pm Sunday evening, notifying parents that because of Governor Inslee's decision to not allow groups of 50 or more...and 50 or less...that was going into effect on Monday. I didn't get the message until I woke up Monday morning...and it looked like the entire State of Washington was starting to shut down.

I headed into town early to make absolutely sure I had alternative medications in my tool kit. If shit is going down, I'll do everything in my power to help my kid not seize. We agreed that it was ok to leave the boys home alone for 15 minutes if need be; something we never do. My husband had to give two exams at 9 am; we passed each other on the road...they were alone for less than 10.

The boys watched a lot of TV today. I streamed BonnieTV...not really, but my dear friend Bonnie owns Little Rhythms Learning Center and she is using Facebook Live to provide lessons for her students...and whoever wants to watch. She's delightful! Thanks, Bonnie, for doing this for all of us. I'll provide live fact-checking on animals whenever I can--haha! Did you guys know that there are actually three species of elephants? Yup. I learned about three elephant species when this dude named Mike Fay did what's called the Megatransect and trekked across the Congo in 1999; he discovered the third species.

Annnnyyywaaaayyyy.....

About noon today, the school district superintendent sent a mass email apologizing for the late notice to cancel school, and letting us know they are working to figure out when kids can go to their school and get their stuff. The Super stated this is an unprecedented time, and asked for the our patience. He also encouraged us to use this week as a sort of spring break...and it sounds like there will be some type of instructional support in place for families in the coming days. And I get it. He made a decision to protect students, staff, and faculty...and for this I am thankful. Oh, and the school district is going to be providing meals for free to kids at the schools, in the parking lot.

Really, nobody knows WTAF is going on since all things surrounding Coronavirus are happening so fast. And you can't not hear about it on the radio station from Victoria, BC, and you can't not see it on social media. It is in your face all the time overwhelming and depressing and scary and stressful. And it's ok to feel that way.

But the sun was out today. And it was warm.

So, for our first day of being at home and mostly hunkering down...mostly...I cleaned, because that helps me decompress. And something told me to call the guy who pumps our septic tank...since it's been a while and we're typically home a lot and we'll be home even more...and I'd rather be proactive than reactive...because I sure the fuck don't need to deal with a failed septic system when we end up like Italy on lock-down. Get ready. San Francisco just did it. It could happen. I anticipate it'll start on the I-5 corridor and spread. But, I'm no oracle, you guys. All I'm saying is nobody is immune to this virus, and we all need to practice social distancing, because it's not a snow day.

Annnnyyywaaaayyyy.....

After the septic guy did his thing, and took my money--and it was full, you guys, like, I'm so glad I listened to my intuition--I finally had my husband alone in the house for two minutes so we could catch-up, since the boys were outside. Next thing I know, my 10-year-old comes down the hall and into our bedroom and says, "Nathan was trying to ride his bike down the slide and fell off!" And everything stopped.

I remained calm and walked outside. Oh Fucking CHRIST! THIS is new! I wonder who's idea THIS was! Why TODAY? Of all days when we absolutely do not need to go near a goddamn emergency room! Please don't let anything be broken. And not a hit to his head. When I got to our swing set in the backyard...the one that my kids have been playing on for what will be 10 years this spring...my 13-year-old was sitting up, with his bike helmet off, the bike on the ground, and scratches on the left side of his face, some mulch on his left shoulder and left knee. I think his Crocs fell off...? Or maybe he took them off before he climbed up? Who fuckin knows?

So it scared the shit out of him. And I'm really really REALLY thankful we opted for rubber mulch because he basically bounced. Kinda. I assessed his joints asked him if he hurt anywhere. He said "I'm fine, Maaawwwmmm!" So, he was ok...but he also has an incredibly high pain tolerance, because it's part of his autism and it can be scary sometimes...like that time he fell on his fingers and had two hairline fractures but it didn't bother him till the next morning.

I asked him to tell me what happened and he looked at me like I was some kind of dumb bitch and he says, "I FELL!" And he rolled his eyes! It was fantastic! I have these little glimmers of neurotypical teenage development and sass...and it's really pretty funny!


Anyway, he said he wanted to ride his bike down the slide, so he hauled his bike up the bars, and then put his bike up on the first deck, and then up on the second deck, and then he got on his bike to ride down and he fell and he landed on his stomach and his shoulder and the bike landed on his back. OUCH!

In the older picture on the right, the bars are horizontal, and in the background. So he carried his bike up those, to the lower deck, which is about 5 feet tall...and then to the upper deck, which is about 7 feet tall...and eventually to the slide where Isaac (purple shirt) is standing. And attempted to ride down. On the first day of Coronavirus: Schooling Optional Eventually, Spring 2020. Totally not on my lesson plan, you guys.

Thank Jesus he's had it drilled into his head from the time he was on a trike that he has to wear a helmet. Because the helmet is toast. Like, in a couple of pieces, it's so disturbing I don't want to put up a picture type of broken.

He managed to get up and walk into the house on his own. He agreed to taking a bath, which helps him decompress, and get the nastiness from the mulch off of you. He hasn't complained of pain at all, but he does have some bruises. My concern is for his left shoulder, since he didn't want to move it too much. So, we'll see what tomorrow brings.

I spoke with my 10-year-old regarding what happened. He said that he watched his brother carry the bike up the bars and couldn't believe what he was seeing. He said he called for us but we never came outside. I suggested that next time he run to the house, yelling for us, and that we'd likely hear him.

I introduced the words "dumbstruck" and "stupefied"...yay new spelling words! Unschooling ROCKS! Oh, and by the way, I homeschooled a special needs kid when I had my Breast Cancer Adventure five years ago...and if I can do it, YOU can do it, you guys. And finally, I'm looking forward to celebrating the fifth anniversary of my lumpectomy on Friday! But I'm disappointed that tattoo parlors are closed down...I was planning on getting a little something to commemorate the occasion...but since Coronavirus is still lurking out there...what will tomorrow bring? Really, at the end of the day, I just don't want you to be Mochi about what's happening. Because it is serious business. And always wear a bike helmet when you ride down a slide.


Tuesday, November 19, 2019

Perspective

I am home today with a sick teenager who has GI issues. 
 
But, today I am choosing to celebrate, because also on this day...

Forty-seven years ago I was born.

Seven years we were at the Autism Center in Seattle, and when I signed us in I accidentally put my birth year instead of the actual year.

Four years ago I completed radiation treatments for breast cancer.
 
And even though I'm planning on being up to my eyeballs in bodily fluids and laundry for the next several days, I am healthy and can be present with my kid during this trying time for him.

Life is all about perspective, you guys. 
 
Choose wisely, younglings. 

This is the only life we have.
 
And, Happy Birthday to ME!

Monday, September 2, 2019

Scantily Clad Barista: The Wonder Woman Edition

Ya know when you're driving and stop at a random coffee stand and the barista is scantily clad in a Wonder Woman outfit, and while it's not at all what you expected, you don't bat an eye? Annnnd THEN, she ends up buying you your coffee for you?

Yeah. That.

Wonder Woman made and bought my coffee. Ok, well, she wasn't really Wonder Woman...but you know what I'm sayin, you guys. And she did make a mean iced coffee on a hot summer day.

It happened on the way home from our first-ever school clothes shopping experience. My soon-to-be thirteen-year-old son was sitting next to me, so I have a witness. And also, no, really...this was our first time ever going school clothes shopping. Because of lots of the numerous and rather intense health issues my family manages on a daily basis.

He really didn't bat an eye either.

Because, duh, it was a hot day and we were shopping down in the Closest Shopping Mecca and we were heading home and I needed a 16-ounce, iced, white chocolate, triple Americano with cream, but easy on the ice please....

So why wouldn't a bodacious young babe with glasses and long brown hair and a nose ring answer the window to a random coffee stand on the highway in the sticks?

Except that she was also in a red underwire Tommy Hilfiger bra and Wonder Woman Blue Underwear with White Stars, complete with a sparkly gold headband with a red star in the middle, and gold wristbands up to her elbows, with a red star on each...to deflect the bullets-n-bullshit....

Girl's gotta earn a living. Shit, I'd do that if I was living a different life...before kids...and who in the goddam still wears Timmy Hilfiger? Tommy? Whateverthefuck.

And it's just a goddamn coffee. I gotta stay awake on the drive. Jesus, you guys. Parenting a child with special needs, while you're driving? Not for the faint of heart.

Anyway, so as she was opening the window, which was a little stuck, I turned to my nearly 13-year-old boy child and said, "Dude! Wonder Woman's gonna make me a coffee! You want anything?"

To which he replied: "Huh?"

Typical. #GoddamnYChromosome

I mean, maybe his reply was because his brain works a little slower due his epilepsy and other neurological challenges. But, he's also an almost teenage boy, and #JesusKnows they don't fuckin' listen.

So I told Wonder Woman that I loved her costume. Just get the bullshit out of the way. I don't care if you're dressed like this because you're coffee stand is popular with the log truck drivers, but I need a goddam coffee and I gotta parent my special needs child who is sitting in the passenger seat, next to me, while I'm driving, for the next 90 minutes. And, fortuitously, your coffee stand is on the right side of the road.

So here we are.

Besides, those bitches in the stand on the other side of the road used too much goddamned ice and I felt I got ripped off, quite honestly. 

So I looked up at Wonder Woman and said, "I need a 16-ounce, iced, white chocolate, triple Americano with cream, but easy on the ice please."

"Easy on the ice?" she asked, with her hip out, because she just stands that way, you guys. I don't know. Maybe she's got scoliosis. Regardless, she's hot.

"Yes, please, Wonder Woman. Easy on the ice," I repeated.

Wonder Woman Talisman
I turn to reach for my purse and I think at this point my son was playing with his Rubik's cube. Duh. He's a fidgiter. And I stated, "You're good...? Right? You've got your water and your Rubik's cube. You're good."

I reached in my purse and pulled out my Wonder Woman Talisman that my sons gave me when I went through breast cancer four years ago and I showed it to her.

I flashed the Wonder Woman Barista our mini-me and said, "My sons gave this to me when I went though breast cancer treatment four years ago..." and Wonder Woman Barista looked at me like, "What the fuck?" which is how I'd look at me too...

And then I said, "and I'd sit there during chemo and rub her boobs for good luck..." and Wonder Woman Barista looked at me like a goddamn deer in the headlights because she sure as shit didn't anticipate this conversation...but she nodded her head and said, "Oh! That's great!"...because, what else was she gonna say...?

I think she probably assumed that our interaction, based on her knowing what she was scantily clad in...seeing a woman pull in, with her teenager-ish-looking son...and the mom probably doesn't know this is a bikini barista stand. Because I didn't. And, if I had to bet money, she probably anticipated a rude interaction with her female/momma bear customer and a gawking teenage boy.

There was no rudeness. It was a pleasant interaction. My teenage boy didn't gawk.

And, apparently, they have topless baristas over on the I-5 corridor! I had no idea! For real. Until my friend was over there conducting farming business, because farmers get up early and my friend needed a goddamn coffee and unknowingly pulled in to a topless barista stand. Sometimes I'm so sheltered I scare myself you guys...anyway, the topless barista covered up and had a lovely conversation with my Female Farmer Friend. And I know a lot of Female Farmers. Because #ClallamCountyLiving ...it's gonna trend.

Then Wonder Woman turned and leaned out the window and handed me my 16-ounce iced, white chocolate, triple Americano with cream, and it was easy on the ice. I looked up at her, like the goddess she is, and said, "What do I owe you?" And she said, "Nothing!"

So I made the face you make when someone gives you something that you didn't expect and insisted I pay. To which she replied, "Nope. This one's on me. It's been a pleasure talking with you." I thanked her, and handed her three bucks and told her it's for her "fun fund" jar.

And then I told the Scantily Clad Wonder Woman Barista to make sure she does a breast self-exam...because that's how I found my lump. Also, if you look really closely at my Wonder Woman Talisman, you can see that the yellow from her outfit is worn off, you guys...because rubbing Wonder Woman's boobs while you're going through breast cancer treatment brings good luck.

That's what I told myself anyway.

A little bit of luck, and a whole bunch of research and science.

And gratitude.

For all the things.


Thursday, March 7, 2019

Dad's Shirts

Dad's shirts arrived in the mail in a plain brown box in April 2017. Understandably, Mom needed to take her time to go through them; they were now incredibly special treasures, containing memories of times gone by and places they had traveled to together. She needed to process, in her own way, what it meant to pack up her deceased husband's shirts to send to me, with the plan being for me to cut some, possibly all, of these shirts up and then sew them back together as a memorial quilt. She didn't know which shirts I would end up working with when she bravely packed them up in Oklahoma, sealed the box and addressed it to my husband and me, and took them to have them shipped all the way up to Northwestern Washington.

Mom and I had many conversations about this project, prior to her shipping them up. I requested creative control, which Mom agreed to. However, she had one caveat: she needed the shirt that Dad had designed and made himself to be in the middle...



...because, obviously, Dad had an incredible sense of humor. And really, you guys, he made it. Because that's what he & Mom used to do for a living before they retired in 2013...about 6 months before Dad was diagnosed. They planned on spending their retirement traveling in their big and beautiful 5th wheel trailer.

My husband's Father was diagnosed with stage 4 prostate cancer in October 2013. And, basically, stage 4 cancer means you're in some serious shit. Like, you really don't EVER want to hear your doctor tell you that. You don't ever want to hear your husband's physician say to your husband, "You have stage 4 cancer." It's the worst of the worst...of the worst.

But Dad, just being Dad, did a bunch of his own research on his disease, he educated himself, and he found a drug study that he was able to participate in which helped to extend his life by about 18 months.
Dad ♡

When my father-in-law passed away in June of 2015, I was going through my own breast cancer chemotherapy treatments. Sometimes life is just fucked up like that. My husband did not attend this father's funeral, which was in Oklahoma. His father was a firm "no" on the topic.

Actually, it was more like an ABSOLUTELY NOT!

He did not expect his son to leave me alone with our two boys, who were 8 and 6 at the time, and home on summer break. Now would probably be a good time to mention that our oldest son has myriad neurological disorders and requires extra supports to get through the day. Because sometimes life is just fucked up like that.

Sorting out child care as a single parent going through chemo...? While I know that there are parents that do not have the choice, I am eternally grateful that my father-in-law was generous enough to not put me through that. I am thankful that he was not so selfish in his dying days that he put his son in a position to choose between staying in Northwestern Washington State with his family who was depending upon him like never before, and traveling to Oklahoma to attend his funeral. A dying father made a decision for his adult child; it was a tremendous gift.

What are ya gonna do?
We visited with him frequently via video chat. We saw him as often as we could all emotionally and physically manage. Being a cancer patient is exhausting. Caring for a cancer patient is taxing. Parenting a child with special needs is incredibly stressful. All of that combined? The amount of pressure we were all under is hard to describe...but at a certain point you have to just surrender that sometimes life happens big time for some families. What are ya gonna do?

While we all emotionally struggled with our own grief in our own way during his passing, we all ultimately respected Dad's dying wish. It was one less decision my husband and I had to make during an already life-altering time for each of us as individuals; for who we were as a couple; for what it means to be parents; and even as adult children, we needed Dad to make this decision...but we didn't know what we needed. Thanks, Dad. I love you.

We all grieve in our own way. There's no "right" or "wrong" to it. It's unique to each individual. So, it didn't surprise me that it took my mother-in-law to take nearly two years to send up the box of shirts. There were about two dozen in all. Not all of them were cotton. I was taught to quilt by old school quilters before my kids were born: cotton.

Cotton-poly blend...ehhh...not so much.

But those 100% cotton t-shirts with all the cool stuff Dad loved? Yup! Gimme those!

However, the box sat in the closet, sorry, Mom, for quite some time. My husband wasn't ready. I was not capable of going through the box myself; at the end of the day, it's his Dad, and he needs to go through it when he's ready. I gently encouraged him when it first arrived...and he pushed back. His own experience with cancer wasn't far enough behind him. His experience as my caregiver during my cancer wasn't far enough behind us. We became busy, as we all do, and the box sat in the closet. For a very, very long time...forgotten...seen occasionally...not quite ready...maybe it was used more than once to cover up a few Christmas gifts for the boys...I'm sure Dad was happy to oblige in a little conspiracy for the boys he loved so much....
Me, texting with my MIL
And then, out of the blue, one day in November 2018, Mom texted me and said, basically, "How's it coming with the quilt?"

I think the first thing I did was say, "Randy! Can you please get that box of your Dad's shirts outta the closet? I gotta get started on that t-shirt quilt for your Mom!"

And then I texted Mom back a few minutes later and said, "Oh, it's coming along...."

The one that got away
My husband opened the box, and he went through the shirts. He separated the t-shirts from the button down shirts. He decided to keep the short-sleeved button down shirts and give me the t-shirts for the quilt. There were a total of 10 t-shirts, however, 9 of them ended up going in the quilt. The last one my husband decided to keep for himself to possibly wear, because it's Batman. Old school Batman.


Now, making a t-shirt quilt is quite an involved process because t-shirts are made from pretty stretchy material...where quilting fabric is, comparatively, less forgiving. It's a tighter weave...and thicker. So you don't use quilting fabric in a wet t-shirt contest.

Also, t-shirt fabric can roll in on itself, and when you're sewing fabric together, you need flat edges...you don't need fabric rolling in on itself because that would make you so frustrated you'd end up throwing your goddam sewing machine through a fuckin' window. So to help keep your sanity from shattering like a pane of glass, you have to get this stuff called fusible interfacing. And this is totally worth it because without it, your t-shirts won't last as long, and quilts are made to be used for years, unlike wet t-shirts. So, the interfacing makes the t-shirt fabric stronger. Got it?

Back of the front of a shirt, with interfacing
It's a necessary step. It's a pain in the ass and it's hella time consuming, but it's not a negotiable thing. First you cut the t-shirts up the seam on each side, then you cut the sleeves at the shoulder...on the seams.

Make sure you check each sleeve because sometimes souvenir t-shirt designers think they are clever and put stuff on the sleeve and you gotta decide if you're gonna incorporate that into the quilt.

Then you gently cut the collar out of the shirt out. You have to be careful here, because some times there can be a design close to the neck, and you certainly don't want to go cutting someone's design. I mean, that's just rude.

Anyway then you take your ironing board and your iron and you have to press, not iron back and forth, but PRESS the fusible interfacing on to the inside of the front of the t-shirt. And you have to HOLD the iron on the fabric for about 10-15 seconds. And you have to have a towel or a cloth diaper or some bullshit piece of fabric between the interfacing and the
iron because you certainly don't have time to get the adhesive from the interfacing off of your iron....

Press the iron. Count to ten slowly. Move the iron. Press the iron. Count to ten slowly. Move the iron. Repeat. A lot. All over the shirt.

On the design wall
I did that for nine shirts. I made each block about 15 inches wide by 17 inches tall. I honored Mom's request that the white Guinea Pig High Powered Drug Control Testing Specimen t-shirt be in the middle. I made sure that the one shirt that had writing on the sleeve was added in. And then I played with different options on my design wall, which is really fancy...it's the underside of a cheap table cloth...the other side is vinyl. And you just put the shirts on the wall...no pins...nothing fancy...just run your hand over it to make it stick.

As I worked on this project in November, with the goal to get it to Mom by Christmas, my family slipped in and out of gastrointestinal illnesses that were going around in our community. Life was telling us to slow down in a way that it hadn't in a while...quilts can wait.
Double border

But we talked a lot about Dad...about Pop-pop...while I worked on this quilt. He was with us. Perhaps he wanted to spend Christmas with us, and that's why I didn't make my personal deadline. Sorry, Mom. But I know you get it better than my own parents do. Thank you for being who you are. 

In our conversations, I asked my husband what his Dad's favorite thing to do was. "Fish," was what #RandySaid

...and as a result, we chose to do a double border: a thin inner border of light blue for water, and a wider outer border full of fishing lures. It was one of those things that just came together.

In the process of sandwiching Dad's Shirts. 
The back of the quilt is also worth considering...and I tend to overthink things. Elvis fabric? They fell in love listening to The King. No. That didn't feel right. Too masculine. After all, it's technically for Mom. Green? Eh...it could work. Brown? Maybe. Purple...of course, because it's Mom's favorite color. But also because no matter what happened, she always had Dad's back. A deep royal purple was in order. The purple is for you, Mom. 

Then I had to sandwich it. No, for real, that's what it's called, you guys.

Basting the quilt
I don't have room in my home for a long-arm quilting machine. But I do have laminate flooring. So, I asked my family to move the dining room table, it was before lunch, and they were feeling really quite helpful throughout this particular project. Then I busted out the 2" wide masking tape, and got down on my hands and knees and taped the back of the quilt to the dining room floor, making sure it was rather taut, keeping the seam in the purple straight. There can be no wrinkles in the fabric.

Then I got the quilt batting and laid that on top of the back of the quilt. And it had to be smooth...no wrinkles. I use the long edge my 24" x 6" flat ruler to gently flatten the batting...kind of a push broom...for the smoothing process.

And then I laid out the quilt top. Again, smoothing it with the edge of the ruler.

And then, finally, I basted the quilt by pinning the shit out of it. I used my flat 24" x 6" ruler again, and safety-pinned all three layers together, in 4" increments, so it'll end up a gigantic grid. I do this so because the old school quilters said. Also, when I eventually untape and pick up the quilt sandwich, it will all stay together and nothing slides around.

The 12 year old sews
And that's sandwiching a quilt.

The final measurements of Dad's Shirts was about 58" wide by about 66" long, so the sandwiching process took a couple of hours of sitting and moving on the floor. It's very grounding, and I think about the type of stitching, or quilting I'm going to do, as I'm moving around and pinning.

And by the way, having quilting as a hobby...it's ain't for the inflexible. Quilting is rather physical. Thank you, me, for giving myself 20+ years of regular yoga practice.

The 9.5 year old sews
Aaaaanyway...so I quilted this bad boy with coordinating thread to match each individual t-shirt. When I was making this quilt, I thought about, and put the call out via Facebook, for quilting with invisible thread. I appreciate the folks who helped and for the loan of invisible thread. However, a very wise quilter at my local quilt shop advised me to not explore invisible thread with this quilt. Why? Too emotional. Dad's Shirts is...and was...a very emotional piece of art for me to be given the opportunity to create. I am very proud to have made something so beautiful. I was, and am, thankful that my Mom-in-law trusted me and loves me and is confident in my crazy ideas and my abilities. But this was absolutely not the quilt to learn to do something new on. I'll save the invisible thread for another time.

So, while matching 12 threads to 12 t-shirts was tedious, it's ok because I added some new colors of thread to my stash. For the bottom thread, on the back of the quilt, I used a variegated purple thread, because I wanted dashes of lighter purples in the back of the quilt. 
Back & binding

I selected a deep burgundy for the binding. The binding of a quilt is the part that goes around the perimeter and part of it is attached to the quilt with a machine. But, the old school quilters said that you are going sit yo'ass down and you're gonna finish that quilt up in your lap, by hand, and use a whip stitch. You do the last step with love. Never with hate. That's only for cooking. 

Label, on the back left bottom corner. Ruler is 12"x6".
It is worth noting, as a Washingtonian, that I did NOT choose purple for the Huskies and burgundy for the Cougars... besides...WSU is crimson, and crimson and burgundy are not the same color. Google it. I did. I'm just too goddamn tired to do a link. I can't give you everything, you guys...be a little bit responsible for your own learning, mkay?

Attaching the label
Because both of my sons sewed on Dad's Shirts, I asked them to help me with the creation of the label. I surrounded the label with dark blue butterflies, because Mom loves butterflies, and Dad loved blue.  The label was attached by hand.

Port Angeles, WA shirt






While working on this project, I remembered fond times of when Dad and Mom came to visit us when we lived in Las Vegas. And I'm thankful they also made it all the way up to Port Angeles to visit us before Dad's diagnosis. Seeing Pop-pop take Angry Birds lessons from my older son, slide down the slide and play with his grandsons is a memory I cherish.
Dad having an Angry Birds lesson



Dad and I's, flying high!
To make sure everything was secure and my quilt was ready to go, I threw it in the washer and dryer, like you do...and it passed inspection. I put Dad's shirts in a large plastic garbage bag, to make sure it was protected, just in case anything happened during shipping.



Hair back; safety first!
And then I put it in a box. Oh! And Mr 9.5 made a couple of one-seam-fleece hats: one for Mom and one for her brother. He was quite proud of these because his entire fourth grade class made hats one day because their teacher is awesome like that! And it would be remiss if me if I didn't include a picture. Boys sew. It's cool, you guys.

And then I put that box into a larger box. Because I'm paranoid about something happening to this one-of-a-kind creation. Of shirts that my Father-in-law used to wear. When he was alive.

It was a stressful couple of days, just after Christmas when I shipped this very special package off. I was regularly checking USPS.com and would get anxious when I didn't know where Dad's Shirts was. But I knew when it was out for delivery. And I made arrangements for Mom to sign for it. Because, you don't cut up your Father-in-law's shirts only to sew them back together and make a memorial quilt for your Mother-in-law and then send it without requesting a signature on delivery. Duh!

Regardless, she texted me when she got it. Thanks, Mom, for trusting me with this. It was an honor and a privilege to create this. Thanks to my husband for always having a keen eye for fabric. Thanks to my sons for helping create something beautiful for Grandma.

Dad's Shirts, 58"x66"